National Alliance in Sweden

Rare Diseases Sweden (Sällsynta diagnoser)
P.O. Box 1386
SE - 172 27 Sundbyberg
Sweden
Tel: 46 8 764 49 99
Fax: 46 8 546 40 494
e-mail: infosallsyntadiagnoser.se
website: www.sallsyntadiagnoser.se

Eurordis Member Patient Organisations

AGRENSKA
Box 2058
43602 - Hovas
Sweden
Tel: 46 31 750 91 00
Fax: 46 03 191 19 79
e-mail: agrenskaagrenska.se
website: www.agrenska.se

Ehlers-Danlos syndrom, EDS Riksförbund (EDS)
c/o Berglund
Björkvägen 77
14733 - Tumba
Sweden
Tel: 46 8 53039433
e-mail: brittaehlers-danlos.se
website: www.ehlers-danlos.se

Prader Willi Syndrome Association in Sweden
c/o Ylhänen Vetegatan 8
11859 Stockholm
SWEDEN
Tel: 46 864 23 220
e-mail: lisa.bomantelia.com
website: www.prader-willi.se

Svenska Marfanföreningen
c/o Mona-Lis Petersson
Allévägen 3
S-137 56 Tungelsta
SWEDEN
Tel: 46 73 33 86 741
e-mail: mona_lisphotmail.com
website: www.marfanforeningen.se

Swedish Cystic Fibrosis Association (RFCF)
Kalsängsgränd 10
SE-753 19- Uppsala
Sweden
Tel: 46 18 15 16 22
Fax: 46 18 12 70 74
e-mail: inforfcf.se
website: www.rfcf.se

SWEDISH MPS SOCIETY
Solvik 3
47161- Myggenas
Sweden
Tel: 304 67 81 01
e-mail: veronica_rasmushotmail.com
website: www.mpsforeningen.se

Rare Diseases Sweden (Sällsynta diagnoser)
P.O. Box 1386
SE - 172 27 Sundbyberg
Sweden
Tel: 46 8 764 49 99
Fax: 46 8 546 40 494
e-mail: infosallsyntadiagnoser.nu
website: www.sallsyntadiagnoser.nu

The Swedish Cooperative Body of Organizations of Disabled People
Box 12053
402 41 - Göteborg
Sweden
Tel: 46 31 367 98 17
Fax: 46 31 14 59 76
e-mail: infogbg.hso.se
website: www.gbghso.se