The purpose of this website is to provide information for rare disease patient organisations, patients, their families, carers, and any other organisation or individual concerned with rare diseases, in relation to: Eurordis’ activities, dedicated to improving the quality of life for those living with rare diseases public health issues at the European level in relation to rare diseases and orphan drugs international news and events involving rare diseases and orphan drugs of interest to patients and patient organisations selected sites and sources of information of use to those affected by rare diseases
This site does not provide medical advice. This site does not contain an index or database of individual rare diseases. Eurordis recommends the sites of its partners, Orphanet and NORD, for visitors seeking information on a specific rare disease. Additional valuable sources of rare disease information are listed in the section of this website entitled: "Rare Disease Sites"
The primary language of the site is English, chosen to facilitate communication among speakers of European languages. You will find complete information in the English section of this website.
A selection of information is also available in five secondary language sections: French, Spanish, German, Italian and Portuguese. When consulting these sections of the site, we recommend that visitors also check the English section for complete information.
This site has been designed to adhere closely to accessibility recommendations and guidelines, in particular to allow visitors with motor or visual disabilities full access to content. If you encounter difficulties using this site, please report the problem to eurordis-webmastereurordis.org.
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