INFORMATION SERVICES

EUROPE
ORPHANET - www.orpha.net

USA
NORD - www.rarediseases.org

GET HELP

FRANCE
Maladies Rares Info Services - www.maladiesraresinfo.org

ITALY
ISS (Istituto Superiore di Sanità) - www.iss.it
UNIAMO - www.uniamo.org

SPAIN
FEDER SIO (Servicio de Informacia y Orientacion) - www.enfermedades-raras.org

LATIN AMERICA
GEISER (Grupo de Enlace, Investigación y Soporte Enfermedades Raras) - www.fundaciongeiser.org

USA
Genetic and Rare Diseases Information Center (GARD) - rarediseases.info.nih.gov

UK
Contact a Family (CAF) - www.cafamily.org.uk
CLIMB (Metabolic Diseases, UK) - www.climb.org.uk

NATIONAL ALLIANCES for rare disease patient groups

A selection of National Alliances for rare disease patient groups in Europe and worldwide - www.eurordis.org

MORE INFORMATION on rare disease information services can be found in the RARE DISEASE SITES section of the Eurordis website.

ASK YOUR DOCTOR Eurordis cannot respond to questions concerning the medical aspects of a rare disease. Eurordis does not employ qualified medical personnel or information specialists to give medical advice, diagnose illness, or offer referrals.

We strongly recommend that you seek the advice of your health care provider with questions regarding medical care.

If you need help finding a patient group for your disease, email us at eurordiseurordis.org

Author: Eurordis
Photo credits: Adrien & his brother © AFM; helpline operator : ©iStockphoto.com/ Rich Legg ; baby & doctor © Jim Gathany / Centers for disease control and prevention ;